Відео

@@vinitdeepak3694 wish you all the best in your healing and recovery!!

@@TanyatasticTalks Thank you

@@cristinamaltinti4103 hi, are you talking about the shingles vaccine? My drs wouldn’t allow me to get it because of my age. Since this video I’ve had 3 more reoccurrences with shingles being active in my system. I now have antivirals on hand just in case another flare up happens. Thankfully RHS hasn’t repeated itself.

Thanks a lot, I'll talk to my doctor and I will take a decision about it but only after an year from the beginning of the symptoms... Here in Italy they suggest to vaccinate against the reactivation of Chickenpox, yes I'm talking about shingles vaccine...however I'm older than you I'm 58...thanks again for your answer🤗.

@@cristinamaltinti4103 you’re welcome, let me know if you have any other questions! Hope you continue to heal well, I know it’s a long hard process. If you’d like more support there is a Facebook group called: Ramsay Hunt Syndrome Support Group

@@TanyatasticTalks thank you 😘😘

@@ottofrost404 great question, I haven’t come across any. But the usual protocol is antivirals for a week (they aren’t given for longer) and prednisone at a decent dosage of 40mg or 50mg for a week also. Sometimes if you see a specialist like I did or a Dr who’s treated this more they may give a tapering dose. But I know of many who were only given a week of prednisone at the initial onset who recovered well. I hope you aren’t in too much pain and can rest well!! Let me know if you have any other questions

​​​​@@TanyatasticTalksYes that is the treatment i get in the Swedish health care. 60 mg kortison prednisone for me. I guess a balance with the side effects of the drugs. Not too much pain _ paracetamol fix that . It feels like i'm on a fishing boat in big waves rolling. I hate swings and such things. I'm not seasick anymore a week into the conditions. Still struggling to tape the left eye. Wonder how long until the eye recovers? I guess wait and see.

I was put on prednisone right away but the antivirals were only given a week after I initially went to the hospital because I was misdiagnosed. So I missed the 72 hour window to start treating the shingles so that there could be less long term effects. Because of that misdiagnosis, I developed other neurological symptoms as a result of late treatment

This will take a bit of time to write out lol. Tremors in hands/arm, gait issues, hypersensitive hearing, chronic fatigue, numbness in limbs- it was starting to progress, facial twitching, neuralgia due to shingles not being treated on time, nervous system constantly overloaded, stutter. Couldn’t work because of all of this. There might be more symptoms missing but anyways.

Sorry to hear her experience, unfortunately it’s common that doctors who don’t fully know the signs, misdiagnose people who are suffering. Having you in her corner is going to mean so much to her!! My family was virtual to my recovery. I hope her recovery is quick and that she rests as much as she can.

The headaches lasted a long time, I still get migraines today. It’s the shingles that’s causing a lot of that unfortunately. 20 days in is still very early in recovery. I wish you all the best!!

Creo que lo que ayudó a que mi cara volviera a la normalidad fue una dosis decreciente de prednisona. Por desgracia, cada persona se cura de una forma diferente. No recibí ningún tratamiento para la parálisis facial. El ojo fue lo que más tardó en recuperarse, incluso cuando el resto de la cara recuperó el movimiento. Ojalá pudiera ser de más ayuda.

@@TanyatasticTalks y cuánto tiempo tomaste la prednisolona?

Thank you for watching, glad it spoke to you and I hope your healing journey is swift!!

Hi, here’s someone that comes recommended: vennmed.com/our-story/daniel-demian/

I found treatment in Ottawa, I travelled there from Montreal. If you watch more recent videos you’ll see what the treatment I had was like.

Hola, todavía estás muy al principio de tu curación. A menudo se tarda unos meses en ver progresos. ¿Te han dado la medicación adecuada? Controlar tu estrés y tomarte tiempo para descansar te ayudará. La vitamina B12 puede ayudar al crecimiento de los nervios.

@@TanyatasticTalks sí correcto, ya el virus no lo tengo, ahora estoy con terapia, y también me inyectó B12, le agradezco mucho la respuesta que me brindaste.

Yes I have, it’s not fun!! I still experience it but it’s on a lesser level than a few years ago!

Thank you for your reply and I'm glad you're better! what helped you cope with the tinnitus when it was really hard?​@@TanyatasticTalks

​Thank you for your reply and I'm glad you're better! what helped you cope with the tinnitus when it was really really hard?​@TanyatasticTalks

@@user-uz1wy7ku6b I used noise cancelling headphones a lot before I found treatment that helped calm my nervous system down, which did in turn reduce my tinnitus. I still experience it now but it's livable. Having background noise to take your mind off of focusing on it all the time also was helpful. If you check out my other videos you can find out more about the treatment I received. I had other neurological issues I was dealing with and so we weren't sure if anything about my hearing would be improved upon or not (tinnitus and hypersensitive hearing).

Sorry to reply so late, but I want to thank you very much for your reply. I think I found your video where you talk about this treatment. Could you write down the exact name of the treatment so that I know for sure if I have found a good one.

I hope that for you too, I know it can be a while before you see results. Be gentle with yourself as best you can!

www.iafnr.org/practitioner-database

You are such a darling, you have really helped me to be courageous. How I wish I can come over there. Nothing is working here in my country, can you imagine taking such pains to a physician and they are also behaving like a novice? They can't even give any tangible counsel than to tell you that the Ramsay hunt must run it course but they don't know for how long. This is so disheartening. They want you to come and pay heavy consultation fees each time you visit them and they can not do anything or even give any advise or referral. Presently I am having a lot of sensation in my face like pulling and tingling,the tinnitus and hypecarusis is still there, exactly one year this month of march 2024. Please my darling sister you are my special friend and adviser now. Please continue to give me encouragement and counsel please. I will go back to the video of you doing some exercises and watch. Please can I get your email address? God bless you real good. I am very hopeful I will get back to my normal life and start going to church and office.

Totally get you, I know it’s hard. I hope you’re not in too much pain!!

Our identity from before RHS compared to after is a tough process. It's normal to feel angry and confused. I, myself, leaned into the emotions I was feeling. The more we try "not" to feel something, we often then just feel more of. If there's a way for you to feel safe in sharing with family/ friends in a way they could consider what it's been like for you could maybe help in time, as that's also a process to get through. Finding things that help you not feel so alone in this journey can also help. Best wishes to you!!

Hi! It took about a month and a half for my face to look almost normal again but took my eye 4-5 months to close properly. I credit that with getting prednisone on a tapering dose

@@TanyatasticTalks у Вас прекрасная улыбка. Через сколько она стала симметричной? У меня это случилось 8 месяцев назад, так лицо почти восстановилось, но улыбка немного асимметричная

@@user-bn8lk4lo5u my smile took a month and a half to two months. I was fortunate it came back so fast. Yours can still come back, some people don’t see a lot of improvement in a year. Synkinesis can develop where the nerves regrow incorrectly which can result in asymmetrical issues in the face. Some people get Botox to help with the pulling sensation that can happen because of facial paralysis. This can help the appearance of symmetry in the face

Sorry to hear that, I know it’s a brutal illness

Sorry to hear you’re going through this, it took about a month and a half to two months for my face to come back, but my eye took 4 months to be able to fully close properly, so I was taping it shut for sleeping etc at night until then and using lots of drops. The issue was that because I wasn’t given antivirals for the shingles I developed post herpetic neuralgia that then brought out other neurological symptoms in my case which became debilitating for 2 and a half years. Hope you heal well and find rest!

Very sorry to hear this. I’ve had 3 reoccurrences in the last 2 years and my original infection was in 2017, any time my immune system was down, it’s come back unfortunately

Yes since then I’ve had 3 flare up of shingles, I have antivirals on hand at my pharmacy on purpose now, all these little things we have to learn unfortunately to be able to make it through

You can contact the centre Ottawa Performance Care, or in Toronto: danieldemian.com

Sorry to hear that, it’s a difficult thing to go through for sure

So glad my videos were able to help Mark!! My hearing sensitivity can still act up if my nervous system is in a heightened state. Hope your recovery continues to go well and you continue to see progress!!🦋

Thank you for watching!! I go back and forth with starting up making videos again, I should do another updated one as to where I’m at with everything.

I would look into Vestibular therapy - that will help with balance and in calming your nervous system down. Depending on where you live there often are centres that help deal with vestibular issues etc.

@@TanyatasticTalks you are such a beautiful soul to have responded. I live in Nigeria, I don't know whether the ent doctors here are not really familiar with stuff like this,I have seen two ent consultants and two ent residents doctors,none has given me any information on what to do, they all said *nothing can be done about it.* Is really discouraging,that is to say, I should go and live with it? Please from your experience are there any exercises or proscription,or things to avoid or do ? Thank you very much. 🥰🥰🥰

Thank you,I just googled and got some exercises for vestibular system. I am grateful my dear friend 💞.

God bless you, I always open page when discouragement is setting in, so as to be strengthened and encouraged again

I wish I could give you a time frame! Every person goes through it differently. If you were treated on time with antivirals for the shingles and prednisone to help your nervous system regroup, you have a better chance at a good recovery. If you’ve just come down with it, rest as much as you can, that is what will help the most. Vitamin B12 helps with nerve regrowth.

Hope it all goes well for you Jo!! All the best to you!!🦋

Re the whistling - I miss this at work when I'm on my own 😢 We also have a dog and I still forget when we're out that I can't whistle 🤦‍♂️

You may benefit from seeing someone trained in functional neuroscience like the centre I found treatment at - Ottawa Performance care. Depending on where you live you may be able to find a centre like them. They are affiliated with the association called IAFNR

Yes I agree, it’s still at the point luckily where it does not affect my day to day, I’m able to work full time, the chronic fatigue has never set back in to where it was years ago. I am fortunate that way. The arm tremor is still there but isn’t constant. That’s basically the main thing that can be present here and there. I still have to be careful with sound but that is mostly due to my previous condition RHS and the shingles have been reactivated 3 times since this video.

Hope you recover well and quickly!