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Tanyatastic Talks
Canada
Приєднався 8 кві 2018
Hi!! My channel is about positivity and encouragement even when you feel life is against you. Chronic illness is a difficult road to journey but it is not the end of us. We can be more than just survivors, we can thrive in this life! I hope my channel encourages you to be the best possible version you can be, acknowledging the tough moments but knowing how to navigate through them and deal with things in a healthy, productive way.
Ramsay Hunt Syndrome 5 years later
Can you believe it's already been 5 years? Watch to see how I'm doing and where I'm at in my life. If you're struggling, you are not alone.
#Ramsayhunt #ramsayhuntsyndrome #chronicillness
#Ramsayhunt #ramsayhuntsyndrome #chronicillness
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Відео
Mike Shoreman | Mental Health & Ramsay Hunt Syndrome
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Back in August I got to interview my friend Mike Shoreman about his experience with RHS and where he's at now with processing it all. Where to find Mike: IG: theunbalancedpaddleboarder FB: eastofsixsup.standupaddleboarding Mike's new book, OUT TODAY! www.amazon.ca/Diaries-Unbalanced-Paddleboarder-Thriving-Survivor-ebook/dp/B08HRM3YLZ Winning Speaker Slam Speech: ua-c...
FND & RHS symptoms 7 months after treatment...
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If you haven't seen my videos detailing my treatment, watch them here: ua-cam.com/video/EZSk4bIv_pU/v-deo.html To find a doctor in your area: iafnr.org/member-referral-directory/ Under 'keyword search' type the area where you live. Ottawa Performance Care: www.ottawaperformancecare.com Dr. Isaiah Redfern: info@ottawaperformancecare.com
Ramsay Hunt Syndrome // 3 Years Later
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Technically it was May 13th, 2017 when it happened but it was during Mother’s Day Weekend. Thanks for watching! Women's Health Article: www.womenshealthmag.com/health/a30915599/ramsay-hunt-syndrome-shingles-in-ear-facial-paralysis-story/ Find Treatment in your area - under keyword search type the province / state area that you're in. You may have to go to a state or province over from where you...
That feeling is grief
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Article: hbr.org/2020/03/that-discomfort-youre-feeling-is-grief Relaxation Exercise: ua-cam.com/video/cgpB4UfcNCc/v-deo.html
Advice from Italy's Lockdown
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I was able to interview a great friend of mine who has been in Italy studying for the last three months. We cover questions like: how to manage throughout this time and what gives her hope to keep going.
Being mindful with others during COVID 19
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Here are some helpful considerations for people who have friends or family members who have a chronic illness or if you are someone that has a chronic illness. Stay safe and be compassionate. A comprehensive article about the situation: medium.com/@tomaspueyo/coronavirus-act-today-or-people-will-die-f4d3d9cd99ca
It's a new day
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I'm back!! Just wanted to update you on where I've been, how I'm doing and what's next for this channel! :D Under keyword search type the area you're looking for eg: UK, Toronto, Texas etc. iafnr.org/member-referral-directory/ How are you doing today?
How am I really doing?
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Find a doctor in your area: iafnr.org/member-referral-directory/ Under keyword search type where you live and options will come up. www.ottawaperformancecare.com #functionalneurologicaldisorder #FNDtreatment #ramsayhuntsyndrome
Interview with Dr. Isaiah Redfern
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Dr. Isaiah Redfern www.ottawaperformancecare.com info@ottawaperformancecare.com Find a Doctor in your area: iafnr.org/member-referral-directory/ Type in Keyword search what city you're in. #functionalneurologicaldisorder #Ramsayhuntsyndrome #treatment
THE CURE FOR MY FND?
Переглядів 8 тис.4 роки тому
Dr. Isaiah Redfern Ottawa Performance Care: www.ottawaperformancecare.com E-mail: info@ottawaperformancecare.com Find a Doctor in your area: iafnr.org/member-referral-directory/ #functionalneurologicaldisorder #cure #symptomreduction
MORE TREATMENT??? [PART 1]
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Part 1 of 4 of my series of this whirlwind of a month!! Unexpected things happened and I'm finally able to share... Ottawa Performance Care Dr. Isaiah Redfern www.ottawaperformancecare.com Paddles by Vlad Gluschenko soundcloud.com/vgl9 Creative Commons - Attribution 3.0 Unported - CC BY 3.0 Free Download / Stream: bit.ly/_paddles Music promoted by Audio Library ua-cam.com/video/1j9QCG1PJJQ/v-de...
WHERE IS HOPE?
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Sometimes it's difficult to find hope and truly know what it really is. Next week I am starting a new series on my channel so I hope you'll stay tuned for that. Let me know how you're doing in the comments below! Article used: www.psychologytoday.com/us/blog/the-science-behind-behavior/201702/whats-the-difference-between-optimism-and-hope #hope #chronicillness
SELF CARE...WHAT IS IT REALLY?
Переглядів 2934 роки тому
Do we really know everything about self care? Want to know how I practice that in my own life and breakdown how you can too? Take a listen and I hope this can help you in your journey!! #selfcare #painting #chronicillness Finesse by Peyruis soundcloud.com/peyruis Creative Commons - Attribution 3.0 Unported - CC BY 3.0 Free Download / Stream: bit.ly/2ORyVAJ Music promoted by Audio Library ua-cam...
Where am I now, two years later? | Functional Neurological Disorder
Переглядів 3,5 тис.4 роки тому
#functionalneurologicaldisorder #chronicillness #grief Two years have already passed since I was hospitalized and diagnosed with functional neurological disorder and I thought it'd be important to reflect on where I'm at now, from where I've been.
The conversation I don't want to have...
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The conversation I don't want to have...
Bose Noise Cancelling Headset vs Custom Earbuds
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Bose Noise Cancelling Headset vs Custom Earbuds
Custom Earbuds vs Earplugs for Hyperacusis | VLOG
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Custom Earbuds vs Earplugs for Hyperacusis | VLOG
How health affects friendships | Chronic Illness
Переглядів 3205 років тому
How health affects friendships | Chronic Illness
Ramsay Hunt Syndrome Two Years Later...
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Ramsay Hunt Syndrome Two Years Later...
MY FIRST YEAR ON YOUTUBE | CHRONIC ILLNESS
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MY FIRST YEAR ON UA-cam | CHRONIC ILLNESS
Health update and exciting things to come | Chronic Illness
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Health update and exciting things to come | Chronic Illness
Transverse Myelitis, Vahen King | Chronic Illness
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Transverse Myelitis, Vahen King | Chronic Illness
OVERTHINKING EVERYTHING | CHRONIC ILLNESS
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OVERTHINKING EVERYTHING | CHRONIC ILLNESS
Hustle culture and work life... is it worth it?? | Chronic Illness
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Hustle culture and work life... is it worth it?? | Chronic Illness
Does chronic illness add to our lives??
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Does chronic illness add to our lives??
Final Hyperacusis Vlog (for a while) | Chronic Illness
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Final Hyperacusis Vlog (for a while) | Chronic Illness
EYE TWITCHING, SHINGLES? | DAILY MAIL FEATURE!!
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EYE TWITCHING, SHINGLES? | DAILY MAIL FEATURE!!
I have been affected with Ramsay Hunt Syndrome from 28th July 2024. I have similar symptoms as you. I am under steroids and physiotherapy and hope I will be completely recovered.
@@vinitdeepak3694 wish you all the best in your healing and recovery!!
@@TanyatasticTalks Thank you
I'm in a state needing euthanasia. FND doesn't exist. It's the word these use when they don't have any answers. I was fine before Neurologically poisoned by Drs with misprescribed drugs.
Hi, thanks for your encouragement. I've been suffering RHS for 4 months and I'm still into it. I noticed just a few millimetres of improvement... I've got a question: did anybody suggest you to make any vaccine to exclude a new activation of the virus? Thanks 😉.
@@cristinamaltinti4103 hi, are you talking about the shingles vaccine? My drs wouldn’t allow me to get it because of my age. Since this video I’ve had 3 more reoccurrences with shingles being active in my system. I now have antivirals on hand just in case another flare up happens. Thankfully RHS hasn’t repeated itself.
Thanks a lot, I'll talk to my doctor and I will take a decision about it but only after an year from the beginning of the symptoms... Here in Italy they suggest to vaccinate against the reactivation of Chickenpox, yes I'm talking about shingles vaccine...however I'm older than you I'm 58...thanks again for your answer🤗.
@@cristinamaltinti4103 you’re welcome, let me know if you have any other questions! Hope you continue to heal well, I know it’s a long hard process. If you’d like more support there is a Facebook group called: Ramsay Hunt Syndrome Support Group
@@TanyatasticTalks thank you 😘😘
Do you have synkinesis or vertigo problems?
Thanks for the video, I was diagnosed a week ago, now I have an idea about the coming weeks. Is there any studies on long term outcomes depending length of treatment with prednisol/kortison and antiviral?
@@ottofrost404 great question, I haven’t come across any. But the usual protocol is antivirals for a week (they aren’t given for longer) and prednisone at a decent dosage of 40mg or 50mg for a week also. Sometimes if you see a specialist like I did or a Dr who’s treated this more they may give a tapering dose. But I know of many who were only given a week of prednisone at the initial onset who recovered well. I hope you aren’t in too much pain and can rest well!! Let me know if you have any other questions
@@TanyatasticTalksYes that is the treatment i get in the Swedish health care. 60 mg kortison prednisone for me. I guess a balance with the side effects of the drugs. Not too much pain _ paracetamol fix that . It feels like i'm on a fishing boat in big waves rolling. I hate swings and such things. I'm not seasick anymore a week into the conditions. Still struggling to tape the left eye. Wonder how long until the eye recovers? I guess wait and see.
I have it too. I cry with you. I just want to sleep. My hearing and vision is worse. Praying for you.
Energy drinks, Pre workout, Caffeine in pill form, CAUSE hyperacusis for me. COFFEE does not! Coffee actual helps normalize my hearing somehow!
I was diagnosed almost 9 weeks ago, and I look similar to your day 5 but it's still a great improvement from where I was. I'm frustrated with my progress, and I stumbled upon your video. I didn't think to wear noise canceling headphones I'll have to try that.
What medications were you put on and how soon aftern symptoms started did you start taking them?
I was put on prednisone right away but the antivirals were only given a week after I initially went to the hospital because I was misdiagnosed. So I missed the 72 hour window to start treating the shingles so that there could be less long term effects. Because of that misdiagnosis, I developed other neurological symptoms as a result of late treatment
I’ve had mines since a kid never made a full recovery
What was your full set of symptoms?. Thanks.
This will take a bit of time to write out lol. Tremors in hands/arm, gait issues, hypersensitive hearing, chronic fatigue, numbness in limbs- it was starting to progress, facial twitching, neuralgia due to shingles not being treated on time, nervous system constantly overloaded, stutter. Couldn’t work because of all of this. There might be more symptoms missing but anyways.
Here because my sister was diagnosed recently. It was over a week and she was turned away by doctors thinking it was just a virtual throat and ear infection. Only when she went Into total facial paralysis did they properly diagnose Ramsay Hunt. Her is worse than your or even Justin Bieber’s. I am trying to lean as much as I can so I can be a supportive big sister. I am sad to hear there may be long term pain. But you are encouraging that one can press on and live well.
Sorry to hear her experience, unfortunately it’s common that doctors who don’t fully know the signs, misdiagnose people who are suffering. Having you in her corner is going to mean so much to her!! My family was virtual to my recovery. I hope her recovery is quick and that she rests as much as she can.
This is absolutely brilliant and so informative. Thank you both so much for sharing this 🙏
Can u please send me your email I'm a patient since 2017
Hello Tonya,this is the third video of yours that I watched. I have shingles it is very painful. 💕NonnaGrace 🐓
You are lucky! I can't find any help or treatment here in the UK 😢
Keep your head up and bravely walk through life. I too had Ramsay Hunt syndrome 2 and a half years ago. My face is 90% back. I still have some minor effects but we don't need to go back. Only unlike you, I had a rash in my mouth and tongue, not on my ear. I know what you've been through. Thanks for sharing this video.
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again🎉..
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again.
Do you get severe headaches after 20days when you actually got the symptoms , first day after symptoms
The headaches lasted a long time, I still get migraines today. It’s the shingles that’s causing a lot of that unfortunately. 20 days in is still very early in recovery. I wish you all the best!!
Hola, qué tipo de terapia usaste para poder volver a sonreír? Llevo 4 meses después del síndrome y aún no logro mover nada de la mitad de mi cara 🥲
Creo que lo que ayudó a que mi cara volviera a la normalidad fue una dosis decreciente de prednisona. Por desgracia, cada persona se cura de una forma diferente. No recibí ningún tratamiento para la parálisis facial. El ojo fue lo que más tardó en recuperarse, incluso cuando el resto de la cara recuperó el movimiento. Ojalá pudiera ser de más ayuda.
@@TanyatasticTalks y cuánto tiempo tomaste la prednisolona?
I was misdiagnosed late jan 2024 with Bells Palsy, only to be diagnosed with RHS a week later. Although I was prescribed steroids i wasn't given any antiviral medicine until a week later. I find your find journey with RHS very inspiring and has given me hope. Thank you for posting your video.
Thank you for watching, glad it spoke to you and I hope your healing journey is swift!!
My husband recently diagnosed with this . Can you suggest a good Dr in Toront
Hi, here’s someone that comes recommended: vennmed.com/our-story/daniel-demian/
I found treatment in Ottawa, I travelled there from Montreal. If you watch more recent videos you’ll see what the treatment I had was like.
The worst feeling is developing chronic debilitating pain and dysfunction, from making somebody else’s business a bunch of money, and watching none of it go back into the program. Now I can’t start mine! 🤦♂️🤦♂️
Hola, hace 2 meses me dio Ransay Hunt, estoy con terapia sin embargo sigo con la mitad de la cara completamente paralizada, ya estoy desesperado ya que no veo mejoras, que me recomiendas hacer?
Hola, todavía estás muy al principio de tu curación. A menudo se tarda unos meses en ver progresos. ¿Te han dado la medicación adecuada? Controlar tu estrés y tomarte tiempo para descansar te ayudará. La vitamina B12 puede ayudar al crecimiento de los nervios.
@@TanyatasticTalks sí correcto, ya el virus no lo tengo, ahora estoy con terapia, y también me inyectó B12, le agradezco mucho la respuesta que me brindaste.
Dear Tanya! you look so good thanks for the video! I suffer from horrible tinnitus. have you had this?
Yes I have, it’s not fun!! I still experience it but it’s on a lesser level than a few years ago!
Thank you for your reply and I'm glad you're better! what helped you cope with the tinnitus when it was really hard?@@TanyatasticTalks
Thank you for your reply and I'm glad you're better! what helped you cope with the tinnitus when it was really really hard?@TanyatasticTalks
@@user-uz1wy7ku6b I used noise cancelling headphones a lot before I found treatment that helped calm my nervous system down, which did in turn reduce my tinnitus. I still experience it now but it's livable. Having background noise to take your mind off of focusing on it all the time also was helpful. If you check out my other videos you can find out more about the treatment I received. I had other neurological issues I was dealing with and so we weren't sure if anything about my hearing would be improved upon or not (tinnitus and hypersensitive hearing).
Sorry to reply so late, but I want to thank you very much for your reply. I think I found your video where you talk about this treatment. Could you write down the exact name of the treatment so that I know for sure if I have found a good one.
Hi!! Thanks for this video I have my first two months with ramsay hunt... I'm frustrated but I hope this situation can be fix soon...
I hope that for you too, I know it can be a while before you see results. Be gentle with yourself as best you can!
Link didn't work
www.iafnr.org/practitioner-database
You are such a darling, you have really helped me to be courageous. How I wish I can come over there. Nothing is working here in my country, can you imagine taking such pains to a physician and they are also behaving like a novice? They can't even give any tangible counsel than to tell you that the Ramsay hunt must run it course but they don't know for how long. This is so disheartening. They want you to come and pay heavy consultation fees each time you visit them and they can not do anything or even give any advise or referral. Presently I am having a lot of sensation in my face like pulling and tingling,the tinnitus and hypecarusis is still there, exactly one year this month of march 2024. Please my darling sister you are my special friend and adviser now. Please continue to give me encouragement and counsel please. I will go back to the video of you doing some exercises and watch. Please can I get your email address? God bless you real good. I am very hopeful I will get back to my normal life and start going to church and office.
This was super encouraging to me to see. I'm so grateful my primary care provider did the right thing and gave my antiviral along with the initial Bell's diagnosis. Went back in four days later because I was -confident- the lesion on my ear was Ramsay Hunt. Fortunately, the only thing we changed was to get even more aggressive with the antivirals. I'm only 9 days in and it's so discouraging sometimes. Face gets so floppy at the end of the day. I'm terrified I'll never smile again without looking like a Batman villain or an old-timey Las Vegas pit boss chewing on a cigar. Thanks so much for this.
Totally get you, I know it’s hard. I hope you’re not in too much pain!!
Español please 😢
Tanya you are such an inspiration. I was diagnosed with RHS in December of 2019. I am physically 90-95 recovered, but mentality and emotionally still struggle. Miss my old life, job, face etc...Family/friends don't understand the impact this has had on me. Don't know how to embrace my new life. I know I am futurnate, but still angry. How do I move on?
Our identity from before RHS compared to after is a tough process. It's normal to feel angry and confused. I, myself, leaned into the emotions I was feeling. The more we try "not" to feel something, we often then just feel more of. If there's a way for you to feel safe in sharing with family/ friends in a way they could consider what it's been like for you could maybe help in time, as that's also a process to get through. Finding things that help you not feel so alone in this journey can also help. Best wishes to you!!
Таня, здравствуйте! Вы отлично выглядите. Сколько времени восстанавливалось ваше лицо?
Hi! It took about a month and a half for my face to look almost normal again but took my eye 4-5 months to close properly. I credit that with getting prednisone on a tapering dose
@@TanyatasticTalks у Вас прекрасная улыбка. Через сколько она стала симметричной? У меня это случилось 8 месяцев назад, так лицо почти восстановилось, но улыбка немного асимметричная
@@user-bn8lk4lo5u my smile took a month and a half to two months. I was fortunate it came back so fast. Yours can still come back, some people don’t see a lot of improvement in a year. Synkinesis can develop where the nerves regrow incorrectly which can result in asymmetrical issues in the face. Some people get Botox to help with the pulling sensation that can happen because of facial paralysis. This can help the appearance of symmetry in the face
i have all the same plus i am now deaf in my left ear and am fighting vertigo. this is month 11 for me.
Sorry to hear that, I know it’s a brutal illness
Thank you so much for sharing. I also had gut swelling, 3 hospitalizations. I even took the shingrex two part shingles vaccine 4 years ago. This has been such a confusing illness, your video gives me hope. How many months did you deal with this? I'm on 6 weeks now
Sorry to hear you’re going through this, it took about a month and a half to two months for my face to come back, but my eye took 4 months to be able to fully close properly, so I was taping it shut for sleeping etc at night until then and using lots of drops. The issue was that because I wasn’t given antivirals for the shingles I developed post herpetic neuralgia that then brought out other neurological symptoms in my case which became debilitating for 2 and a half years. Hope you heal well and find rest!
❤ 5:07
I was diagnosed with shingles on the 8th Sep 20-23 , I have chronic nerve pain STILL , and now the itching rash again , I think I have shingles again , I am just waiting to see if the blisters appear again .. I feel extremely weak , in terrible pain .
Very sorry to hear this. I’ve had 3 reoccurrences in the last 2 years and my original infection was in 2017, any time my immune system was down, it’s come back unfortunately
Shingles twice now . Antivirals straight to Dr
Yes since then I’ve had 3 flare up of shingles, I have antivirals on hand at my pharmacy on purpose now, all these little things we have to learn unfortunately to be able to make it through
Hi there I am from Toronto and really am looking for a healing for my FND
You can contact the centre Ottawa Performance Care, or in Toronto: danieldemian.com
Thank you for sharing I've just come across your video I have the same problem my left side is kinda paralyzed I can't hear or close my eye or make facial expression I have had it since 2019 been on medication and nothing has improved
Sorry to hear that, it’s a difficult thing to go through for sure
Hi Mika!❤ Great to hear you're doing so well now. I'm just shy of a year in, still have intermittent tinnitus and sensitivity. Facially I'm still struggling with my eye care and mouth tingling. If I'm eating or try talking a lot, my eye drops closed now rather than being wide open. I get twitching of the eye when tired too. ENT say I'm doing well and a year+ is normal for full(ISH) recovery. Thank you for your posts, they really helped during those dark early days. Stay well 🤗
So glad my videos were able to help Mark!! My hearing sensitivity can still act up if my nervous system is in a heightened state. Hope your recovery continues to go well and you continue to see progress!!🦋
You're such a soulful person. I'm bummed you don't have any recent videos. Aside from Ramsay Hunt talk, you have the personality to be impactful on others. I really enjoyed this video for the Ramsay Hunt information, but overall the positive and outlook you have had really brightened my spirits. Thank you!!
Thank you for watching!! I go back and forth with starting up making videos again, I should do another updated one as to where I’m at with everything.
Thank you very very much, you are such a great encouragement. I thank God my facial symmetry is returning gradually after five months. Please what I am facing now is that I have tinnitus,phyteracusis, spinning in my head and I have visited three different ENT doctors, they said there's nothing anyone can do about it. Please from your experience can you give me any useful advice? It's really affecting me,I can't stay in office, church and any loud noisy environments. Please let me hear from you. Thank you. Please i send this same message to your other video link. Hopefully i I will hear from you. I really happy to see you like this.
I would look into Vestibular therapy - that will help with balance and in calming your nervous system down. Depending on where you live there often are centres that help deal with vestibular issues etc.
@@TanyatasticTalks you are such a beautiful soul to have responded. I live in Nigeria, I don't know whether the ent doctors here are not really familiar with stuff like this,I have seen two ent consultants and two ent residents doctors,none has given me any information on what to do, they all said *nothing can be done about it.* Is really discouraging,that is to say, I should go and live with it? Please from your experience are there any exercises or proscription,or things to avoid or do ? Thank you very much. 🥰🥰🥰
Thank you,I just googled and got some exercises for vestibular system. I am grateful my dear friend 💞.
God bless you, I always open page when discouragement is setting in, so as to be strengthened and encouraged again
Hi Tanya, thanks for sharing this video, going through the same right side of my face and shingles in my ear. Hope you can advise how long would i bave to deal with the symptoms as nothing seems to work on my medications🥺
I wish I could give you a time frame! Every person goes through it differently. If you were treated on time with antivirals for the shingles and prednisone to help your nervous system regroup, you have a better chance at a good recovery. If you’ve just come down with it, rest as much as you can, that is what will help the most. Vitamin B12 helps with nerve regrowth.
Tkyou so much for sharing yr journey with FND.Hard yards 😢.I live in NZ and it's now 2 long years since diagnosis.Finally starting therapy with OT,Physio,rehab coach.Its all so daunting 😢.I am so glad to of had a phycotherapist over that time that has literally saved my life.I encourage all to reach out,keep asking for help until you're heard.God Bless KiaKaha ❤ Jo NZ
Hope it all goes well for you Jo!! All the best to you!!🦋
Hi Tanya. It’s reassuring to know that I’m not alone in suffering the after affects of RHS. I was struck down with it in October 2022. Completely out of the blue.. no prior illness or stress. Initially before the paralysis I had a week of excruciating ear pain resembling an icicle being driven into my right ear. Then I woke up with the paralysis and numbness. The early symptoms were pain, lethargy, vertigo and a feeling of disconnection with the real world around me, as if I was living a video game! Thankfully those symptoms have gone now and I have regained about 90% of my fascial muscle control. Drinking from a bottle is still a challenge and I don’t think I’ll be whistling any time soon. Occasionally I get a dull ear/headache that worries me. I dread the return of the syndrome. I was given steroids on day one but only started antivirals on day six as the ear blisters only appeared then. I worry that this delay might have negative effects on my recovery. All my research only offers advice for treatment immediately after the attack but no advice on how to prevent a reoccurrence of RHS. This plays on my mind greatly. Can you offer any advice on preventative measures? Regards Liam
Re the whistling - I miss this at work when I'm on my own 😢 We also have a dog and I still forget when we're out that I can't whistle 🤦♂️
Anyone got tinnitus after Ramsey Hunt? My face come back to normal but my left ear is tingling and ringing. Also get tired easy and ringing? Is there a fix?
You may benefit from seeing someone trained in functional neuroscience like the centre I found treatment at - Ottawa Performance care. Depending on where you live you may be able to find a centre like them. They are affiliated with the association called IAFNR
I don’t think it’s ever truly ‘gone’ as such , but you may have long periods with very little symptoms. It’s a fluctuating condition.
Yes I agree, it’s still at the point luckily where it does not affect my day to day, I’m able to work full time, the chronic fatigue has never set back in to where it was years ago. I am fortunate that way. The arm tremor is still there but isn’t constant. That’s basically the main thing that can be present here and there. I still have to be careful with sound but that is mostly due to my previous condition RHS and the shingles have been reactivated 3 times since this video.
I just got diagnosed withRHS 7 days ago. It’s been so painful. Only slight paralysis but got the ugly rash on the side of my nose my eye my lip and my scalp. Thank you for the videos. I’ve been bc so scared about when it’s going to get better. You gave me hope ❤
Hope you recover well and quickly!
I got Diagnosed 7 days it’s been crazy and painful. I have it in my scalp my nose my lip and the bottom of my eye. Thank you for your video. This headache is insane.
I’m so grateful to you for your candidness & boldness to show yourself on camera and share your thoughts and experiences. I was diagnosed with Bells Palsy, but then quickly realized (through my own research) that I actually had RHS. It’s almost 6 weeks now. I went to ER first thing in the morning when I noticed my lips not pursing. Had a dose of steroids and antivirals. My pain subsided after a few weeks. Still some, but not as bad as it was. I have little pustules all over my skull, mostly the right side (paralyzed side), and in my ear and on my neck. My questions are: 1. what tests can be done to see if you still have the virus raging in your body? 2. Can they test to see if your nerves are dead? 3. Should I see a Neurologist, ENT or only someone in the same group as your guy?